Ethical challenges in online research: Public/private perceptions

Lisa Sugiura, Rosemary Wiles, Catherine Pope

Research Ethics · 2016 · 183 citations · 33 references

DOIFull text

Open access

Concepts

TL;DR

The Web’s abundance of publicly available user data creates new research opportunities, yet inconsistent ethical guidelines and the need to address consent, privacy, and anonymity challenge the adequacy of traditional principles. This article examines online medicine purchasing forums through a case study and reviews current ethical guidance for online research. The authors conduct a doctoral‑level case study of online medicine purchasing forums and analyze existing ethical guidance. The study concludes that new ethical guidelines are required, particularly regarding informed consent and participants’ perceptions of public versus private information.

Abstract

With its wealth of readily and often publicly available information about Web users’ lives, the Web has created new opportunities for conducting online research. Although digital data are easily accessible, ethical guidelines are inconsistent about how researchers should use them. Some academics claim that traditional ethical principles are sufficient and applicable to online research. However, the Web poses new challenges that compel researchers to reconsider concerns of consent, privacy and anonymity. Based on doctoral research into the investigation of online medicine purchasing, this article presents a case study involving online forums, and reviews the existing ethical guidance surrounding the Web. The suggestion is that new ethical guidelines, particularly in relation to informed consent and participants’ own perceptions of what is public or private, are needed owing to the unique challenges of online research.

References

33