Designing a social network to support the independence of young adults with autism

Abstract

Independence is key to a successful transition to adulthood for individuals with autism. Social support is a crucial factor for achieving adaptive self-help life skills. In this paper we describe the results of a formative design exercise with young adults with autism and their caregivers to uncover opportunities for social networks to promote independence and facilitate coordination. We propose the concept of SocialMirror, a device connected to an online social network that allows the young adult to seek advice from a trusted and responsive network of family, friends and professionals. Focus group discussions reveal the potential for SocialMirror to increase motivation to learn everyday life skills among young adults with autism and to foster collaboration among a distributed care network. We present design considerations to leverage a small trusted network that balances quick response with safeguards for privacy and security of young adults with autism.