Patient Registries

Patient Registries is a systematic data collection infrastructure that prospectively gathers standardized information on individuals with a specific condition or exposure, distinguished by its longitudinal design and primary focus on characterizing disease progression, treatment patterns, and outcomes in real-world clinical contexts.

1.6K

Publications

111.2K

Citations

11.8K

Authors

3.3K

Institutions

Publications per year

2017–2026

659

Parents

Pachyonychia CongenitaPharmacovigilance Data Sources

Publications

1.6K

ClinVar: improving access to variant interpretations and supporting evidence

Melissa Landrum, Jennifer M. Lee, Mark J. Benson et al. · Nucleic Acids Research · 2017 · 4.5K citations · Full text

Life Sciences, Bioinformatics, Genetics +17

CBTRUS Statistical Report: Primary Brain and Central Nervous System Tumors Diagnosed in the United States in 2008-2012

Quinn T. Ostrom, Haley Gittleman, Jordonna Fulop et al. · Neuro-Oncology · 2015 · 2.2K citations · Full text

Medicine, Oncology, Cancer Epidemiology +12

Real-World Evidence — What Is It and What Can It Tell Us?

Rachel E. Sherman, Steven A. Anderson, Gerald J. Dal Pan et al. · New England Journal of Medicine · 2016 · 2.1K citations

Law, Health Informatics, Health Policy +17

The Danish National Hospital Register. A valuable source of data for modern health sciences.

Tavs Folmer Andersen, Morten Madsen, Jens Otto Lunde Jørgensen et al. · PubMed · 1999 · 2K citations

Public Health, Health Sciences, Disease Surveillance +16

The Danish Psychiatric Central Research Register

Ole Mors, Gurli Perto, Preben Bo Mortensen · Scandinavian Journal of Public Health · 2011 · 1.6K citations

Medicine, Psychiatry, Adult Psychiatry +10

1–5 of 1.6K

Authors

11.8K

HL
Hanns Lochmüller
Newcastle University, United Kingdom
16 publications · 1.2K citations
16
h-index
DT
Domenica Taruscio
Istituto Superiore di Sanità, Italy
13 publications · 703 citations
13
h-index
HT
Henrik Toft Sørensen
Aarhus University Hospital, Denmark
14 publications · 1.2K citations
12
h-index
AS
Art Sedrakyan
Cornell University, United States
10 publications · 570 citations
10
h-index
FI
Florenzo Iannone
University of Bari Aldo Moro, Italy
10 publications · 453 citations
10
h-index

1–5 of 11.8K

Institutions

3.3K

1–8 of 3.3K

Venues

Cancer
55 publications · 7K citations
40
h-index
PubMed
Repository · 117 publications · 7.9K citations
36
h-index
Orphanet Journal of Rare Diseases
OJRD · 26 publications · 1.6K citations
22
h-index
PLoS ONE
23 publications · 894 citations
18
h-index
JAMA
16 publications · 2.5K citations
14
h-index

1–5