Concepedia

Data Sharing Consent

Data Sharing Consent is an academic concept that denotes a formal, informed, and revocable authorization granted by a data subject that specifies the conditions under which their personal data may be collected, used, and disseminated among stakeholders for research or commercial purposes, thereby distinguishing it from general consent by its explicit focus on the terms, scope, and governance of data exchange.

27

Publications

1.8K

Citations

229

Authors

136

Institutions

Publications per year

2017–2026

21

Parents

Publications

27

Many researchers were not compliant with their published data sharing statement: a mixed-methods study

Mirko Gabelica, Ružica Bojčić, Livia Puljak · Journal of Clinical Epidemiology · 2022 · 266 citations

, , +12

Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US

Saskia C. Sanderson, Kyle B. Brothers, Nathaniel D. Mercaldo et al. · The American Journal of Human Genetics · 2017 · 258 citations · Full text

, , +16

Practical Tips for Ethical Data Sharing

Michelle N. Meyer · Advances in Methods and Practices in Psychological Science · 2018 · 257 citations · Full text

, , +16

Comparison of consumers’ views on electronic data sharing for healthcare and research

Katherine Kim, Jill G. Joseph, Lucila Ohno‐Machado · Journal of the American Medical Informatics Association · 2015 · 149 citations · Full text

, , +16

To share or not to share: A randomized trial of consent for data sharing in genome research

Amy L. McGuire, Jill M Oliver, Melody J. Slashinski et al. · Genetics in Medicine · 2011 · 131 citations · Full text

, , +14

1–5 of 27

Authors

229

  1. BM
    Bartha Maria Knoppers

    McGill University, Canada

    3 publications · 159 citations

    3

    h-index

  2. PY
    Phaik Yeong Cheah

    Mahidol Oxford Tropical Medicine Research Unit, Thailand

    2 publications · 142 citations

    2

    h-index

  3. MB
    Michael Brudno

    University of Toronto, Canada

    2 publications · 65 citations

    2

    h-index

  4. SO
    Stephanie O. M. Dyke

    McGill University, Canada

    2 publications · 65 citations

    2

    h-index

  5. AP
    Anthony Philippakis

    Broad Institute, United States

    2 publications · 65 citations

    2

    h-index

1–5 of 229

Institutions

136

  1. University College London

    London, United Kingdom

    4 h-index

    4 publications

    449 citations

  2. Harvard University

    Cambridge, United States

    3 h-index

    3 publications

    93 citations

  3. McGill University

    Montreal, Canada

    3 h-index

    11 publications

    650 citations

  4. University of Oxford

    Oxford, United Kingdom

    3 h-index

    9 publications

    601 citations

  5. Universitat Pompeu Fabra

    Barcelona, Spain

    2 h-index

    5 publications

    156 citations

  6. Children's Hospital of Eastern Ontario

    Ottawa, Canada

    2 h-index

    2 publications

    65 citations

  7. Hospital for Sick Children

    Toronto, Canada

    2 h-index

    2 publications

    65 citations

  8. Vanderbilt University Medical Center

    Nashville, United States

    2 h-index

    2 publications

    306 citations

1–8 of 136

Venues

  1. Journal of Empirical Research on Human Research Ethics

    JERHRE · 2 publications · 122 citations

    2

    h-index

  2. Science Editing

    1 publications · 21 citations

    1

    h-index

  3. Science

    1 publications · 43 citations

    1

    h-index

  4. Qualitative Health Research

    QHR · 1 publications · 31 citations

    1

    h-index

  5. British Journal of Educational Technology

    BJET · 1 publications · 27 citations

    1

    h-index

1–5