Amy Hunter

Time to diagnosis and determinants of diagnostic delays of people living with a rare disease: results of a Rare Barometer retrospective patient survey

Fatoumata Faye, Claudia Crocione, Roberta Anido de Peña et al. · European Journal of Human Genetics · 2024 · 110 citations · Full text

Public Health, Biostatistics, Clinical Epidemiology +11

How are patients with rare diseases and their carers in the UK impacted by the way care is coordinated? An exploratory qualitative interview study

Amy Simpson, Lara Bloom, Naomi Fulop et al. · Orphanet Journal of Rare Diseases · 2021 · 93 citations · Full text

Nursing, Health Systems, Continuity Of Care +15

EUPATI and Patients in Medicines Research and Development: Guidance for Patient Involvement in Regulatory Processes

David Haerry, Cordula Landgraf, Kay Warner et al. · Frontiers in Medicine · 2018 · 81 citations · Full text

Pharmacy, Pharmaceutical Policy, Pharmacology +17

EUPATI Guidance for Patient Involvement in Medicines Research and Development: Health Technology Assessment

Amy Hunter, Karen Facey, Victoria Thomas et al. · Frontiers in Medicine · 2018 · 72 citations · Full text

Public Affairs, Health Policy, Pharmacoeconomics +15

EUPATI Guidance for Patient Involvement in Medicines Research and Development (R&D); Guidance for Pharmaceutical Industry-Led Medicines R&D

Kay Warner, Wolf See, David Haerry et al. · Frontiers in Medicine · 2018 · 72 citations · Full text

Pharmacy, Pharmaceutical Policy, Drug Approval Processes +14