Lara Bloom

The 2017 international classification of the Ehlers–Danlos syndromes

Fransiska Malfait, Clair A. Francomano, Peter H. Byers et al. · American Journal of Medical Genetics Part C Seminars in Medical Genetics · 2017 · 1.9K citations · Full text

Life Sciences, Genetics, Molecular Genetics +16

The international consortium on the Ehlers–Danlos syndromes

Lara Bloom, Peter H. Byers, Clair A. Francomano et al. · American Journal of Medical Genetics Part C Seminars in Medical Genetics · 2017 · 116 citations

Life Sciences, Genetics, Molecular Genetics +16

How are patients with rare diseases and their carers in the UK impacted by the way care is coordinated? An exploratory qualitative interview study

Amy Simpson, Lara Bloom, Naomi Fulop et al. · Orphanet Journal of Rare Diseases · 2021 · 93 citations · Full text

Nursing, Health Systems, Continuity Of Care +15

Development of models of care coordination for rare conditions: a qualitative study

Holly Walton, Amy Simpson, Angus I. G. Ramsay et al. · Orphanet Journal of Rare Diseases · 2022 · 47 citations · Full text

Nursing, Health Care Management, Health Services Administration +10

Initial description and evaluation of EDS ECHO: An international effort to improve care for people with the Ehlers‐Danlos syndromes and hypermobility spectrum disorders

Jane R. Schubart, Rebecca Bascom, Clair A. Francomano et al. · American Journal of Medical Genetics Part C Seminars in Medical Genetics · 2021 · 23 citations

Nursing, Community Health, Health Assessment +10