Journal of Autism and Developmental Disorders · 2017 · 81 citations · 52 references
Social SciencesHuman DevelopmentAutism Spectrum DisordersChild DevelopmentFamily StudiesFamily SupportParent-child InteractionParent-child RelationshipsParental ParticipationParental SupportParentingAutism AcceptanceAutism Family SupportFather-child InteractionFathers' InvolvementInformal Caregiver SupportInformal Family SupportParental SupportivenessSemi-structured Interviews
Research exploring parents' experiences of having offspring with autism spectrum disorder (ASD) currently underrepresents fathers. This study aimed to develop an understanding of the experience of fathers, with a view to facilitating improved support. Eight fathers participated in semi-structured interviews exploring their experiences of fathering children with ASD. Fathers described their experiences as a path towards acceptance, with independence and integration for their offspring being key goals. Fathers saw themselves as advocates fighting obstructive services to access appropriate care. The value placed on formal and informal support varied, although the need for personalised support was emphasised. Enabling fathers to see their experiences as a journey, whilst engaging them on the important topics of independence and integration, may improve their experience.
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