American Ethnologist · 2008 · 154 citations · 29 references
MedicineNephrologyPolitical ScienceDialysisKidney TransplantationMedical EthicsChronic Kidney DiseaseEnd-stage Kidney Disease CareRenal DiseaseTransplant EthicsTransplantation EthicsBioethics Of Organ ShortageEnd-stage Kidney Disease ManagementFairness In Organ TransplantationKidney HealthPolluted BodiesRenal Failure ManagementRenal Replacement Therapy Ethics
ABSTRACT In this article, I describe how poor Egyptian kidney‐disease patients understand and experience their illness in terms of Egypt's larger social, economic, and political ills. The suffering that patients in end‐stage renal failure endure, as they articulate it, extends beyond the pathological kidney and implicates corrupt institutions, polluted water, the mismanagement of toxic waste, and unsafe food. End‐stage kidney failure patients in Egypt depend on state‐provided medical services, which they deeply mistrust. In this context, they understand the breakdown of their kidneys, their dialysis machines, and their bodies as a direct outcome of the breakdown of the welfare state. I argue that patients' perceptions of their disease and their mistrust of medical treatment and state service provision should make us reconsider how all etiologies are political. Further, the “political etiologies” in this case inform ethical decisions about kidney transplantation and maintaining life on dialysis. [ bioethics, the body, kidney disease, organ transplantation, state welfare, neoliberalism, Egypt ]
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Larissa Remennick · JAMA · 2003 · 1.5K citations
The Global Traffic in Human Organs
Nancy Scheper‐Hughes · Current Anthropology · 2000 · 711 citations · Full text