Topics in Spinal Cord Injury Rehabilitation · 2009 · 26 citations · 26 references
Social SciencesCommunity HealthCommunity EngagementCommunity-based Participatory ResearchHealth Services ResearchParticipatory Action ResearchPatient-provider RelationshipsPeer SupportSocial SupportSupport GroupsSupportive CommunicationPeer Support SystemsPeer Support TrainingPeer-led Support GroupsPhenomenological DescriptionPhenomenological InterviewsPhenomenological Research DesignSpinal Cord Injury ManagementSupport Group Participation
The unique needs of women with a spinal cord injury are not well understood, resulting in inadequate services. The Telephone Peer Support Group Program provided seven women with SCI living in rural and remote areas in Ontario with access to peer support and experts' knowledge. Participants were decision makers in all phases of the program. The phenomenological research method was used to capture the essence of their experiences. Two primary structures of experience emerged: emotional support and learning. Participants gave and received emotional, affirmational, and informational support, which resulted in different levels of reported change and transformation. The participatory approach contributed to participants' satisfaction.
26
Handbook of action research : participative inquiry and practice
Hilary Bradbury · 2001 · 2.4K citations