Concepedia

Identifying data sources for a national population-based registry: the experience of the Spanish Rare Diseases Registry

Ana Clara Zoni, M. Felicitas Domínguez‐Berjón, E. Barceló, María D. Esteban‐Vasallo, I. Abaitua, J. Jiménez Villa, M. Margolles Martins, Carmen Navarro, Julián Mauro Ramos Aceitero, C Santos,

Public Health · 2015 · 13 citations · 3 references

DOIFull text

Open access

Concepts

References

3

The common problem of rare disease in general practice

Andrew Knight, Timothy P Senior · The Medical Journal of Australia · 2006 · 116 citations

, , +15

The case for a global rare-diseases registry

Christopher B. Forrest, Ronald Bartek, Yaffa Rubinstein et al. · The Lancet · 2010 · 78 citations

, , +11

The European Union Policy in the Field of Rare Diseases

Antoni Montserrat Moliner, J. Waligóra · Public Health Genomics · 2013 · 51 citations

, , +8