Parents' Experiences With Childhood Deafness

Abstract

In response to the need for family-centered follow-up, this study examined parents' experiences with deafness after early identification. Qualitative inquiry methods were used to explore and describe the perceptions and experiences of nine parents of children identified with severe to profound deafness. Parents participated in face-to-face conversations and interviews by phone and e-mail. Naturalistic inquiry methods were used to identify themes in family experiences including reactions to diagnosis; decision making; impact of deafness on family interactions, family time, and the child; positive experiences in early intervention; and desired support services. Implications and recommendations for early intervention programs are discussed.