Concepedia

Patient-centered Data Sharing

Patient-Centered Data Sharing is a patient-driven model of health information exchange that prioritizes individual control, access, and agency in the sharing of personal health data across care settings, technologies, and stakeholders to support personalized care, research, and health equity.

29

Publications

1.1K

Citations

208

Authors

127

Institutions

Publications per year

2017–2026

13

Parents

Publications

29

Perceived benefits of sharing health data between people with epilepsy on an online platform

Paul Wicks, Dorothy L. Keininger, Michael P. Massagli et al. · Epilepsy & Behavior · 2011 · 123 citations · Full text

, , +17

Changing the research landscape: the New York City Clinical Data Research Network

Rainu Kaushal, George Hripcsak, Deborah D. Ascheim et al. · Journal of the American Medical Informatics Association · 2014 · 103 citations · Full text

, , +17

Aggregating multiple real-world data sources using a patient-centered health-data-sharing platform

Sanket S. Dhruva, Joseph S. Ross, Joseph G. Akar et al. · npj Digital Medicine · 2020 · 86 citations · Full text

, , +15

Linking social media and medical record data: a study of adults presenting to an academic, urban emergency department

Kevin Padrez, Lyle Ungar, Hansen Andrew Schwartz et al. · BMJ Quality & Safety · 2015 · 78 citations

, , +16

User-Centered Design Groups to Engage Patients and Caregivers with a Personalized Health Information Technology Tool

Molly E. Maher, Elizabeth Kaziunas, Mark S. Ackerman et al. · Biology of Blood and Marrow Transplantation · 2015 · 63 citations · Full text

, , +15

1–5 of 29

Authors

208

  1. CH
    Charlotte Haug

    Universität Ulm, Germany

    2 publications · 78 citations

    2

    h-index

  2. RP
    Regina Poß-Doering

    University Hospital Heidelberg, Germany

    1 publications · 16 citations

    1

    h-index

  3. AS
    Anand Singh Rajawat

    Sandip Foundation, India

    1 publications · 13 citations

    1

    h-index

  4. LS
    Liselotte Selter

    Swiss Academy of Medical Sciences, Switzerland

    1 publications · 23 citations

    1

    h-index

  5. EK
    Elizabeth Kaziunas

    University of Michigan, United States

    1 publications · 63 citations

    1

    h-index

1–5 of 208

Institutions

127

  1. University of California, San Francisco

    San Francisco, United States

    2 h-index

    2 publications

    164 citations

  2. National Cancer Institute

    Bethesda, United States

    2 h-index

    2 publications

    76 citations

  3. Center for International Environmental Law

    Washington D.C., United States

    2 h-index

    2 publications

    78 citations

  4. Inserm

    Paris, France

    2 h-index

    2 publications

    61 citations

  5. Blue Cross Blue Shield of Massachusetts

    Boston, United States

    1 h-index

    1 publications

    10 citations

  6. Michigan Center for Translational Pathology

    Ann Arbor, United States

    1 h-index

    2 publications

    126 citations

  7. Montefiore Medical Center

    Bronx, United States

    1 h-index

    2 publications

    206 citations

  8. University of Pennsylvania Health System

    Philadelphia, United States

    1 h-index

    10 publications

    780 citations

1–8 of 127

Venues

  1. New England Journal of Medicine

    NEJM · 3 publications · 112 citations

    3

    h-index

  2. Health Informatics Journal

    2 publications · 45 citations

    2

    h-index

  3. Journal of the American Medical Informatics Association

    JAMIA · 2 publications · 158 citations

    2

    h-index

  4. npj Digital Medicine

    1 publications · 86 citations

    1

    h-index

  5. 1

    h-index

1–5