Concepedia

Consent-based Data Sharing

Consent-Based Data Sharing is a data governance framework in which the permissible use and transfer of personal or sensitive data is contingent upon the explicit, informed, and revocable authorization granted by the data subject, thereby distinguishing it from other data sharing models that may rely on legal mandates, anonymization, or institutional permissions.

38

Publications

2.3K

Citations

234

Authors

120

Institutions

Publications per year

2017–2026

33

Parents

Publications

38

Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US

Saskia C. Sanderson, Kyle B. Brothers, Nathaniel D. Mercaldo et al. · The American Journal of Human Genetics · 2017 · 258 citations · Full text

, , +16

Practical Tips for Ethical Data Sharing

Michelle N. Meyer · Advances in Methods and Practices in Psychological Science · 2018 · 257 citations · Full text

, , +16

Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study

Karen Spencer, Caroline Sanders, Edgar A. Whitley et al. · Journal of Medical Internet Research · 2016 · 200 citations · Full text

, , +15

A Consent Model for Blockchain-Based Health Data Sharing Platforms

Vikas Jaiman, Visara Urovi · IEEE Access · 2020 · 137 citations · Full text

, , +16

To share or not to share: A randomized trial of consent for data sharing in genome research

Amy L. McGuire, Jill M Oliver, Melody J. Slashinski et al. · Genetics in Medicine · 2011 · 131 citations · Full text

, , +14

1–5 of 38

Authors

234

  1. GP
    Gail P. Jarvik

    University of Washington, United States

    2 publications · 292 citations

    2

    h-index

  2. ND
    Nathaniel D. Mercaldo

    Massachusetts General Hospital, United States

    2 publications · 292 citations

    2

    h-index

  3. JL
    Janet L. Williams

    The University of Texas MD Anderson Cancer Center, United States

    2 publications · 292 citations

    2

    h-index

  4. NA
    Nanibaa’ A. Garrison

    University of Washington, United States

    2 publications · 292 citations

    2

    h-index

  5. CA
    Catherine A. McCarty

    Marshfield Clinic, United States

    2 publications · 292 citations

    2

    h-index

1–5 of 234

Institutions

120

  1. University of Oxford

    Oxford, United Kingdom

    5 h-index

    14 publications

    751 citations

  2. University of Cambridge

    Cambridge, United Kingdom

    3 h-index

    8 publications

    605 citations

  3. University College London

    London, United Kingdom

    3 h-index

    3 publications

    401 citations

  4. Kaiser Permanente Washington Health Research Institute

    Seattle, United States

    2 h-index

    4 publications

    808 citations

  5. Wellcome Centre for Ethics and Humanities

    Oxford, United Kingdom

    2 h-index

    6 publications

    210 citations

  6. Center for Human Genetics

    Bar Harbor, United States

    2 h-index

    3 publications

    550 citations

  7. Cincinnati Children's Hospital Medical Center

    Cincinnati, United States

    2 h-index

    4 publications

    584 citations

  8. University of Manchester

    Manchester, United Kingdom

    2 h-index

    5 publications

    708 citations

1–8 of 120

Venues

  1. Journal of Law and the Biosciences

    JLB · 1 publications · 88 citations

    1

    h-index

  2. Genetics in Medicine

    GIM · 1 publications · 131 citations

    1

    h-index

  3. Digital Health

    1 publications · 21 citations

    1

    h-index

  4. Journal of Personalized Medicine

    JPM · 1 publications · 28 citations

    1

    h-index

  5. BioMed Research International

    1 publications · 20 citations

    1

    h-index

1–5