Peter A. Merkel

Clinical research for rare disease: Opportunities, challenges, and solutions

Robert C. Griggs, Mark L. Batshaw, Mary Dunkle et al. · Molecular Genetics and Metabolism · 2008 · 407 citations · Full text

Life Sciences, Clinical Sciences, Genetics +14

The partnership of patient advocacy groups and clinical investigators in the rare diseases clinical research network

Peter A. Merkel, Michele Manion, Rashmi Gopal-Srivastava et al. · Orphanet Journal of Rare Diseases · 2016 · 94 citations · Full text

Nursing, Health Policy, Advocacy +16

Patient-powered research networks: building capacity for conducting patient-centered clinical outcomes research

Sarah E. Daugherty, Sarita Wahba, Rachael Fleurence et al. · Journal of the American Medical Informatics Association · 2014 · 68 citations · Full text

Pharmacy, Health Informatics, Community Engagement +16

Illness Perceptions and Fatigue in Systemic Vasculitis

Peter C. Grayson, Naomi A. Amudala, Carol A. McAlear et al. · Arthritis Care & Research · 2013 · 67 citations · Full text

Nursing, Internal Medicine, Health Assessment +16

Using patient-reported outcomes and PROMIS in research and clinical applications: experiences from the PCORI pilot projects

Clifton O. Bingham, Susan J. Bartlett, Peter A. Merkel et al. · Quality of Life Research · 2016 · 64 citations · Full text

Pharmacy, Health Informatics, Health Assessment +15