Lisa Belter

Quality of life data for individuals affected by spinal muscular atrophy: a baseline dataset from the Cure SMA Community Update Survey

Lisa Belter, Rosángel Cruz, Jill Jarecki · Orphanet Journal of Rare Diseases · 2020 · 47 citations · Full text

An overview of the Cure SMA membership database: Highlights of key demographic and clinical characteristics of SMA members

Lisa Belter, Suzanne F. Cook, Thomas O. Crawford et al. · Journal of Neuromuscular Diseases · 2018 · 44 citations · Full text

Comparative Effectiveness of Patient-centered Strategies to Improve FDA Medication Guides

Michael S. Wolf, Stacy Cooper Bailey, Marina Serper et al. · Medical Care · 2014 · 41 citations

Spinal Muscular Atrophy (SMA) Subtype Concordance in Siblings: Findings From the Cure SMA Cohort

Cynthia C. Jones, Suzanne F. Cook, Jill Jarecki et al. · Journal of Neuromuscular Diseases · 2019 · 33 citations · Full text

“I have SMA, SMA doesn’t have me”: a qualitative snapshot into the challenges, successes, and quality of life of adolescents and young adults with SMA

Allison Mazzella, Mary Ann Curry, Lisa Belter et al. · Orphanet Journal of Rare Diseases · 2021 · 33 citations · Full text