American Society of Clinical Oncology Educational Book · 2023 · 23 citations · 10 references
NursingOncologyAdvocacyTranslational MedicineTranslational OncologyCancer PolicyClinical TrialsHealth AdvocacyPatient AdvocacyPatient EngagementTranslational Cancer ResearchAdvocacy In OncologyCancer AdvocacyClinical PartnershipsCollaborative PartnershipInternational Research FundingPartnership WorkingResearcher PartnershipsTranslational Clinical Trial Design
Inclusion of advocates as partners in research is now required by numerous international funding agencies. The role of advocates has expanded in recent years to include all areas of research, including basic cancer research, translational research, and clinical trial design and development. The involvement of advocates as partners in cancer research can be challenging for the advocate and for the researchers, but this collaboration is beneficial to all involved. Herein, we will define patient advocacy, explore advocate engagement, and share information on programs that train advocates and researchers to work together as partners.
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Joanna Crocker, Anne‐Marie Boylan, Jennifer Bostock et al. · Health Expectations · 2016 · 199 citations · Full text