Concepedia

Uncertainties experienced by parents of children diagnosed with severe combined immunodeficiency through newborn screening

Melissa Raspa, Oksana Kutsa, Sara M. Andrews, Angela Gwaltney, Erin Mallonee, Alissa Creamer, Paul K. J. Han, Barbara B. Biesecker

European Journal of Human Genetics · 2023 · 12 citations · 29 references

DOIFull text

Open access

Concepts

References

29

Understanding interobserver agreement: the kappa statistic.

Anthony J. Viera, Joanne M. Garrett · PubMed · 2005 · 7.1K citations

, , +12

Consensual qualitative research: An update.

Clara E. Hill, Sarah Knox, B. J. Thompson et al. · Journal of Counseling Psychology · 2005 · 2.8K citations · Full text

, , +13

Communication and Uncertainty Management

Dale E. Brashers · Journal of Communication · 2001 · 1.3K citations

, , +9

The Measurement of Uncertainty in Illness

Merle H. Mishel · Nursing Research · 1981 · 763 citations

, , +14

Hematopoietic Stem-Cell Transplantation for the Treatment of Severe Combined Immunodeficiency

Rebecca H. Buckley, Sherrie E. Schiff, Richard I. Schiff et al. · New England Journal of Medicine · 1999 · 708 citations · Full text

, , +15