Genetics in Medicine · 2022 · 12 citations · 30 references
There is substantial international variation in the extent to which the RoR may motivate people's intent to donate DNA or health data. The United States may not be a clear indicator of global attitudes. Participants' preferences for return of genomic results globally should be considered.
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Disclosing Individual Results of Clinical Research
David I. Shalowitz, Franklin G. Miller · JAMA · 2005 · 263 citations
Flavia M. Facio, Stephanie Brooks, Johanna Loewenstein et al. · European Journal of Human Genetics · 2011 · 134 citations · Full text