Health Expectations · 2018 · 43 citations · 21 references
Despite broad stakeholder categories, clear themes emerged: there is no "leader"; no stakeholder has a clear view on how to meaningfully engage with patients; there are educational gaps; and a structure and guidance for PE is urgently required. Given the diversity of stakeholders, there needs to be multistakeholder collaborative leadership. Effective collaboration requires consensus on roles, responsibilities and expectations to synergize efforts to deliver meaningful PE in medicines life cycle.
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Emerging Guidelines for Patient Engagement in Research
John Kirwan, Maarten de Wit, Lori Frank et al. · Value in Health · 2016 · 223 citations · Full text