Journal of Comparative Effectiveness Research · 2017 · 19 citations · 13 references
Public HealthHealth PolicyComparative Effectiveness ResearchEvidence-based PracticeHealth Services ResearchDissemination Of Research FindingsParticipant RecruitmentPatient EngagementPatient Engagement StrategiesPatient-provider RelationshipsStudy DesignClinical CollaborationClinical PartnershipsCo-researcher ParticipationCollaborative PartnershipEffectiveness ResearchResearch Participant EngagementResearcher PartnershipsResearcher Reflexivity
AIM: To understand researcher capability for and interest in patient-centered comparative effectiveness research (PC-CER), particularly related to engaging with patients/caregivers. MATERIALS & METHODS: Web-based survey of 508 health researchers recruited via professional health research organizations. RESULTS: Most respondents (94%) were familiar with CER and many (69%) reported having previously conducting some form of CER. Most respondents were familiar with (81%) and interested in (87%) partnering with patients and/or caregivers in research. Resources to assist in training, coordination of partners, guidance in apply for funding and improved infrastructure were commonly cited factors that would help researchers conduct PC-CER. CONCLUSION: There is a significant opportunity for researchers to engage patients and caregivers as partners in CER. Researchers recognize the need for additional training and expertise to leverage those opportunities.
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The PCORI Perspective on Patient-Centered Outcomes Research
Lori Frank, Ethan Basch, Joe V. Selby · JAMA · 2014 · 583 citations
Pharmacy, Health Policy, Comparative Effectiveness Research +13
Prevalence, Characteristics, and Publication of Discontinued Randomized Trials
Benjamin Kasenda, Erik von Elm, John J. You et al. · JAMA · 2014 · 430 citations · Full text
Public Health, Public Health Ethics, Clinical Epidemiology +16
Health researchers’ attitudes towards public involvement in health research
Jill Thompson, Rosemary Barber, Paul Ward et al. · Health Expectations · 2009 · 218 citations · Full text