Concepedia

Prophylaxis usage, bleeding rates, and joint outcomes of hemophilia, 1999 to 2010: a surveillance project

Marilyn Johnson, J. Michael Soucie, Joan Cox Gill

Blood · 2017 · 163 citations · 15 references

DOIFull text

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Concepts

Abstract

< .001 for each). Using a national registry, care providers in a specialized health care network for a rare disorder were able to detect and track trends in outcomes over time.

References

15

Prophylaxis versus Episodic Treatment to Prevent Joint Disease in Boys with Severe Hemophilia

Marilyn J. Manco‐Johnson, Thomas C. Abshire, Amy D. Shapiro et al. · New England Journal of Medicine · 2007 · 1.9K citations · Full text

, , +13

Twenty‐five years' experience of prophylactic treatment in severe haemophilia A and B

I. M. Nilsson, Erik Berntorp, Thomas Löfqvist et al. · Journal of Internal Medicine · 1992 · 968 citations

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A longitudinal study of orthopaedic outcomes for severe factor‐VIII‐deficient haemophiliacs

Louis M. Aledort, R. H. HASCHMEYER, H. Pettersson · Journal of Internal Medicine · 1994 · 613 citations

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Range of motion measurements: reference values and a database for comparison studies

J. Michael Soucie, Chang-Wen Wang, Angela Forsyth et al. · Haemophilia · 2010 · 454 citations

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The effects of postponing prophylactic treatment on long-term outcome in patients with severe hemophilia

Kathelijn Fischer, Johanna G. van der Bom, Eveline P. Mauser‐Bunschoten et al. · Blood · 2002 · 257 citations

, , +8