Publication | Closed Access
The Political Cartography of the Human Genome Project
24
Citations
16
References
1996
Year
Biomedical EthicGeneticsScience EthicUnited KingdomGenomicsResearch EthicsGenetic MappingGenetic MedicineClinical GeneticsHuman PhenotypesPolitical CartographyGenome AnalysisBioethicsPublic HealthHuman Research EthicEthical IssuesGenomic MedicineSociologyScience And Technology StudiesAnthropologyReference GenomeMedicinePublic Health Genetics
This article examines the mobilization of resources for the Human Genome Mapping Project in the United Kingdom. The Project was established through an award of additional funds to the Medical Research Council at a time of financial stringency within publicly funded science, accompanied by relatively little of the debate that had surrounded the U.S. initiative. It is argued, following Fujimura and Star’s terminology, that the project was “packaged” and repackaged by its proponents so that it aligned the, otherwise disparate, agendas of several “social worlds.” Furthermore, by bringing together certain social worlds and not others, some issues were also excluded from discussion. In this instance, the social and ethical issues surrounding genetic mapping were accorded a much lower profile than in other national programs.
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