Experts and the public: a needed partnership for genetic policy

Abstract

Scientists are wary of public participation in policy that influences the work of scientific discovery and technological application. In the area of genetic science this is particularly troublesome. The science and its applications are extremely complex. How the public can play a part in guiding the process is not clear. Yet genetic possibilities affect individuals and social groups intimately and the exercise of social responsibility for policies is imperative. A solution lies in effective partnership between scientific experts and the general public within the framework of representative democracy. Goals of education, information transfer, and community building point to methods for public participation. The community meeting approach used in the development of health care priorities in Oregon is highlighted. Obstacles to participation come from our weak sense of community, widespread political alienation, endemic cynicism, and problems of social voice.