An automated communication system in a contact registry for persons with rare diseases: Scalable tools for identifying and recruiting clinical research participants

Registering Clinical Trials

Kay Dickersin · JAMA · 2003 · 522 citations

Pharmacy, Health Law, Clinical Trial Regulation +16

Fabry disease: Baseline medical characteristics of a cohort of 1765 males and females in the Fabry Registry

Christine M. Eng, Janice M. Fletcher, William R. Wilcox et al. · Journal of Inherited Metabolic Disease · 2007 · 387 citations

Life Sciences, Genetics, Epidemiology +5

International Morquio A Registry: Clinical manifestation and natural course of Morquio A disease

Adriana M. Montaño, Shunji Tomatsu, Gary S. Gottesman et al. · Journal of Inherited Metabolic Disease · 2007 · 364 citations

Veterinary Medicine, Internal Medicine, Pathobiology +2

Mechanical Circulatory Support Device Database of the International Society for Heart and Lung Transplantation: Third Annual Report—2005⁎ ⁎All figures and tables from this report, and a more comprehensive set of ISHLT registry slides are available at www.ishlt.org/registries/

Mario C. Deng, Leah B. Edwards, Marshall I. Hertz et al. · The Journal of Heart and Lung Transplantation · 2005 · 348 citations

Medicine, Cardiology, Surgery +11

Promoting patient participation and shortening cancer consultations: a randomised trial

Richard Brown, Phyllis Butow, Stewart M. Dunn et al. · British Journal of Cancer · 2001 · 310 citations · Full text

Nursing, Oncology, Radiation Oncology +13