Building New Dreams

TLDR

Raising a child with a congenital anomaly or chronic medical problem challenges families, and while many are resilient, such conditions can strain parenting and relationships, with parental adaptation predicting family well‑being and child attachment security. The authors argue that interventions targeting parental emotional, cognitive, and behavioral adaptation can broadly promote family well‑being, and they discuss considerations and unanswered questions about implementing such an intervention. They describe an 8‑session parent‑group intervention, outlining its rationale, goals, and guidelines to foster adaptation among families with chronically ill children.

Abstract

Raising a child with a congenital anomaly or other chronic medical problem challenges families. Although most families are resilient, depending on families' relative balance of strengths and vulnerabilities, chronic child health conditions can contribute to problems with parenting and family relationships. We believe interventions can broadly promote family well-being by focusing on parental emotional, cognitive, and behavioral adaptation to their child's condition. Parents' adaptation to their child's diagnosis has been found to predict both family well-being and their child's attachment security. After reviewing these and other relevant findings on families with children with chronic medical conditions, the second half of this article describes a parent group intervention designed to promote adaptation among such families. The rationale, goals, and guidelines of this 8-session intervention are provided. Considerations and unanswered questions about implementing the intervention are also discussed.