Journal of Empirical Research on Human Research Ethics · 2011 · 37 citations · 16 references
EducationResearch Ethics ReviewResearch EthicsCommunicationSocial SciencesInstitution-based IrbsParticipatory ResearchEthic CommitteeCommunity GroupsHuman Research EthicPublic InvolvementCommunity EngagementResearch-practice PartnershipResearch Ethics BoardsCommunity DevelopmentCommunity-based ResearchSociologyEthical ReviewPublication EthicCommunity-based Processes
Community groups are implementing research ethics review processes to determine whether and how research is conducted in their communities. We report on a survey of 109 of these community-based review processes about their relationships with institution based research ethics boards (I-REBs). Ninety-two percent reported that studies they review were also reviewed by an I-REB. Over half characterized their relationship with I-REBs positively. Those with positive relationships were significantly more likely to communicate with the involved I-REBs. Challenges when working with I-REBs included delays, communication problems, and lack of I-REB understanding of community-based participatory research. Strengthening relationships between community-based review processes and I-REBs could ultimately enhance reviews of community-engaged research.
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