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Creating a global rare disease patient registry linked to a rare diseases biorepository database: Rare Disease-HUB (RD-HUB)

Yaffa Rubinstein, Stephen C. Groft, Ronald Bartek, Kyle Brown, Ronald Christensen, Elaine Collier, Amy Farber, Jennifer Farmer, John H. Ferguson, Christopher B. Forrest,

Contemporary Clinical Trials · 2010 · 116 citations · 0 references

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