Whose Gene Is It? A Case Discussion About Familial Conflict over Genetic Testing for Breast Cancer

Abstract

Abstract A multidisciplinary group of genetic and other professionals discuss a complex case of familial conflict over access to genetic information. One twin wishes to know the results of her deceased mother's tests for BRCA1 mutations; a second twin objects to researchers making this information available. As the case discussion unfolds, the apparent “facts” of this case are called into question and the lines of ethical certainty become less clear.