Grandparent Caregivers I

Abstract

Summary Using an informal data capture technique, 164 grandparents caring for 208 children with developmental delay or diagnosed disabilities were surveyed in New York City to determine their health status, emotional state, use of formal and informal services, and general life situation. The vast majority of grandparents were female (96%) and African-American (80%). Their ages ranged from 40 to 82. Generally they had cared for at least one grandchild for an average of seven years. The data showed that for these grandparents (1) caregiving was an all-consuming role, (2) their lives were fraught with uncertainty and they could not access sufficient formal and informal supports, and (3) they were constantly worried about the future.