Concepedia

Patient Data Access

Patient Data Access is a consumer-mediated exchange mechanism that enables individuals to obtain, control, and share their personal health information across healthcare entities, distinguished by its emphasis on patient autonomy, data portability, and active participation in health-related decision-making.

301

Publications

14.5K

Citations

1.3K

Authors

609

Institutions

Publications per year

2017–2026

160

Parents

Publications

301

Toward a National Framework for the Secondary Use of Health Data: An American Medical Informatics Association White Paper

C. Safran, M. Bloomrosen, W. Ed Hammond et al. · Journal of the American Medical Informatics Association · 2006 · 723 citations

, , +17

Social Uses of Personal Health Information Within PatientsLikeMe, an Online Patient Community: What Can Happen When Patients Have Access to One Another’s Data

Jeana Frost, Michael P. Massagli · Journal of Medical Internet Research · 2008 · 550 citations · Full text

, , +17

Achieving a Nationwide Learning Health System

Charles P. Friedman, Adam Wong, David Blumenthal · Science Translational Medicine · 2010 · 537 citations

, , +16

Wearable Health Technology and Electronic Health Record Integration: Scoping Review and Future Directions

Catherine Dinh-Le, Rachel Chuang, Sara Chokshi · JMIR mhealth and uhealth · 2019 · 413 citations · Full text

, , +17

Creating Value In Health Care Through Big Data: Opportunities And Policy Implications

Joachim Roski, George W. Bo‐Linn, Timothy A. Andrews · Health Affairs · 2014 · 328 citations

, , +15

1–5 of 301

Authors

1.3K

  1. MH
    Maria Hägglund

    Uppsala University, Sweden

    4 publications · 83 citations

    4

    h-index

  2. KD
    Kenneth D. Mandl

    Boston Children's Hospital, United States

    4 publications · 295 citations

    4

    h-index

  3. CB
    Charlotte Blease

    Beth Israel Deaconess Medical Center, United States

    4 publications · 113 citations

    4

    h-index

  4. AM
    Anita Murcko

    Arizona State University, United States

    3 publications · 67 citations

    3

    h-index

  5. DC
    Darwyn Chern

    Arizona State University, United States

    3 publications · 67 citations

    3

    h-index

1–5 of 1.3K

Institutions

609

  1. Harvard University

    Cambridge, United States

    14 h-index

    45 publications

    3.6K citations

  2. University of California, San Francisco

    San Francisco, United States

    9 h-index

    22 publications

    978 citations

  3. Uppsala University

    Uppsala, Sweden

    8 h-index

    15 publications

    297 citations

  4. Duke University

    Durham, United States

    7 h-index

    11 publications

    1.2K citations

  5. Columbia University

    New York, United States

    7 h-index

    16 publications

    631 citations

  6. Beth Israel Deaconess Medical Center

    Boston, United States

    7 h-index

    16 publications

    1.3K citations

  7. University of Toronto

    Toronto, Canada

    7 h-index

    17 publications

    570 citations

  8. Johns Hopkins University

    Baltimore, United States

    6 h-index

    15 publications

    505 citations

1–8 of 609

Venues

  1. Journal of Medical Internet Research

    18 publications · 1.3K citations

    16

    h-index

  2. Journal of the American Medical Informatics Association

    JAMIA · 18 publications · 1.7K citations

    16

    h-index

  3. PubMed

    Repository · 16 publications · 451 citations

    13

    h-index

  4. Studies in health technology and informatics

    Book series · 9 publications · 206 citations

    9

    h-index

  5. New England Journal of Medicine

    NEJM · 9 publications · 568 citations

    9

    h-index

1–5