Concepedia

Data Linkage Governance

Data Linkage Governance is a formal framework that establishes policies, procedures, and oversight mechanisms to ensure the ethical, secure, and authorized integration and use of data from multiple sources while preserving participant confidentiality and regulatory compliance.

25

Publications

1.3K

Citations

125

Authors

72

Institutions

Publications per year

2017–2026

15

Parents

Publications

25

The SAIL Databank: building a national architecture for e-health research and evaluation

David Ford, Kerina Jones, Jean-Philippe Verplancke et al. · BMC Health Services Research · 2009 · 593 citations · Full text

, , +17

Data linkage infrastructure for cross-jurisdictional health-related research in Australia

James Boyd, Anna Ferrante, Christine M. O’Keefe et al. · BMC Health Services Research · 2012 · 80 citations · Full text

, , +17

Addressing the challenges of cross‐jurisdictional data linkage between a national clinical quality registry and government‐held health data

Nadine E. Andrew, Vijaya Sundararajan, Amanda G. Thrift et al. · Australian and New Zealand Journal of Public Health · 2016 · 60 citations · Full text

, , +16

Connected Bradford:  a Whole System Data Linkage Accelerator

Kuldeep Sohal, Dan Mason, John Birkinshaw et al. · Wellcome Open Research · 2022 · 47 citations · Full text

, , +17

Towards Principles–Based Approaches to Governance of Health–Related Research Using Personal Data

Graeme Laurie, Nayha Sethi · European Journal of Risk Regulation · 2013 · 42 citations · Full text

, , +15

1–5 of 25

Authors

125

  1. JB
    James Boyd

    Curtin University, Australia

    3 publications · 154 citations

    3

    h-index

  2. KJ
    Kerina Jones

    Swansea University, United Kingdom

    3 publications · 637 citations

    3

    h-index

  3. CB
    Charles Burchill

    University of Manitoba, Canada

    3 publications · 85 citations

    3

    h-index

  4. AK
    Alan Katz

    University of Manitoba, Canada

    2 publications · 46 citations

    2

    h-index

  5. RS
    R. Shore

    Wildfowl & Wetlands Trust, United Kingdom

    2 publications · 74 citations

    2

    h-index

1–5 of 125

Institutions

72

  1. University of British Columbia

    Vancouver, Canada

    4 h-index

    9 publications

    268 citations

  2. Manitoba Health

    Winnipeg, Canada

    3 h-index

    15 publications

    393 citations

  3. Swansea University

    Swansea, United Kingdom

    3 h-index

    11 publications

    4.8K citations

  4. Curtin University

    Perth, Australia

    3 h-index

    6 publications

    394 citations

  5. University of Manitoba

    Winnipeg, Canada

    3 h-index

    15 publications

    393 citations

  6. Monash University

    Melbourne, Australia

    2 h-index

    6 publications

    264 citations

  7. New South Wales Department of Health

    North Sydney, Australia

    2 h-index

    4 publications

    76 citations

  8. The Quebec Population Health Research Network

    Montreal, Canada

    2 h-index

    8 publications

    232 citations

1–8 of 72

Venues

  1. International Journal for Population Data Science

    IJPDS · 6 publications · 143 citations

    6

    h-index

  2. PubMed

    Repository · 5 publications · 91 citations

    5

    h-index

  3. BMC Health Services Research

    2 publications · 673 citations

    2

    h-index

  4. Wellcome Open Research

    2 publications · 74 citations

    2

    h-index

  5. Journal of the American Medical Informatics Association

    JAMIA · 1 publications · 16 citations

    1

    h-index

1–5