Concepedia

Data Custodianship

Data Custodianship is a formal responsibility within health information governance that designates an individual or entity as the steward of specific health data assets, ensuring their secure, accurate, and compliant management throughout the data lifecycle.

10

Publications

252

Citations

26

Authors

16

Institutions

Publications per year

2017–2026

5

Parents

Children

Publications

10

Blockchain as a Notarization Service for Data Sharing with Personal Data Store

Mohammad Jabed Morshed Chowdhury, Alan Colman, Muhammad Ashad Kabir et al. · 2018 · 84 citations

, , +17

The role of data custodians in establishing and maintaining social licence for health research

Carolyn Adams, Felicity Flack · Bioethics · 2019 · 28 citations

, , +6

Towards a Paradigm Shift in Governing Data Access and Related Intellectual Property Rights in Big Data and Health-Related Research

Pamela Andanda · GRURRR. Gewerblicher Rechtsschutz und Urheberrecht, Rechtsprechungs-Report/GRUR-DVD/GRUR-CD/IIC/Gewerblicher Rechtsschutz und Urheberrecht/Gewerblicher Rechtsschutz und Urheberrecht. Internationaler Teil · 2019 · 27 citations · Full text

, , +17

Modifications to the Custodis Procedure

Harvey Lincoff, John McLean · American Journal of Ophthalmology · 1967 · 26 citations

, , +1

Qualitative study on custodianship of human biological material and data stored in biobanks

Michiel Verlinden, Herman Nys, Nadine Ectors et al. · BMC Medical Ethics · 2016 · 23 citations · Full text

, , +16

1–5 of 10

Authors

26

  1. GL
    Graeme Laurie

    University of Edinburgh, United Kingdom

    2 publications · 27 citations

    2

    h-index

  2. NE
    Nadine Ectors

    KU Leuven, Belgium

    1 publications · 23 citations

    1

    h-index

  3. LS
    Leslie Stevens

    University of Edinburgh, United Kingdom

    1 publications · 14 citations

    1

    h-index

  4. MA
    Michaela A. Balzarova

    University of Canterbury, New Zealand

    1 publications · 14 citations

    1

    h-index

  5. JR
    John Robst

    University of South Florida, United States

    1 publications · 10 citations

    1

    h-index

1–5 of 26

Institutions

16

  1. University of Edinburgh

    Edinburgh, United Kingdom

    2 h-index

    4 publications

    54 citations

  2. KU Leuven

    Leuven, Belgium

    1 h-index

    4 publications

    92 citations

  3. Cornell University

    Ithaca, United States

    1 h-index

    2 publications

    52 citations

  4. NewYork–Presbyterian Hospital

    New York, United States

    1 h-index

    2 publications

    52 citations

  5. Macquarie University

    Sydney, Australia

    1 h-index

    1 publications

    28 citations

  6. Edinburgh College

    Edinburgh, United Kingdom

    1 h-index

    2 publications

    28 citations

  7. The University of Western Australia

    Perth, Australia

    1 h-index

    1 publications

    28 citations

  8. University of the Witwatersrand

    Johannesburg, South Africa

    1 h-index

    1 publications

    27 citations

1–8 of 16

Venues

  1. American Journal of Ophthalmology

    1 publications · 26 citations

    1

    h-index

  2. Administration & Society

    AAS · 1 publications · 10 citations

    1

    h-index

  3. Bioethics

    1 publications · 28 citations

    1

    h-index

  4. Journal of Law and the Biosciences

    JLB · 1 publications · 13 citations

    1

    h-index

  5. Journal of Law and Society

    1 publications · 14 citations

    1

    h-index

1–5