Concepedia

Cross-registry Interoperability

Cross-Registry Interoperability is the capacity of distinct clinical trial registry systems to exchange, interpret, and consistently utilize trial data and metadata through standardized protocols, syntactic frameworks, and semantic representations, enabling seamless integration and mutual recognition across heterogeneous regulatory and organizational domains.

13

Publications

414

Citations

128

Authors

100

Institutions

Publications per year

2017–2026

7

Parents

Publications

13

Dispelling myths about rare disease registry system development

M. Bellgard, Christophe Béroud, Kay Parkinson et al. · Source Code for Biology and Medicine · 2013 · 85 citations · Full text

, , +13

Design, development and deployment of a web-based interoperable registry for inherited retinal dystrophies in Portugal: the IRD-PT

João Pedro Marques, Ana Luísa Carvalho, José Henriques et al. · Orphanet Journal of Rare Diseases · 2020 · 54 citations · Full text

, , +15

Rare disease registries: a call to action

Paul Lacaze, Nicole Millis, Megan Fookes et al. · Internal Medicine Journal · 2017 · 45 citations · Full text

, , +16

Methodological Guidelines and Recommendations for Efficient and Rationale Governance of Patient Registries

Metka Zaletel, Martina Kralj, M Magajne et al. · European Journal of Public Health · 2015 · 43 citations · Full text

, , +17

Harmonising and linking biomedical and clinical data across disparate data archives to enable integrative cross-biobank research

Ola Spjuth, Maria Krestyaninova, Janna Hastings et al. · European Journal of Human Genetics · 2015 · 35 citations · Full text

, , +16

1–5 of 13

Authors

128

  1. MB
    M. Bellgard

    Murdoch University, Australia

    3 publications · 146 citations

    3

    h-index

  2. AH
    Adam Hunter

    Murdoch University, Australia

    2 publications · 101 citations

    2

    h-index

  3. TW
    Tarun Weeramanthri

    Government of Western Australia Department of Health, Australia

    2 publications · 101 citations

    2

    h-index

  4. JR
    Johan Rung

    European Bioinformatics Institute, United Kingdom

    1 publications · 35 citations

    1

    h-index

  5. AJ
    Adam Jaffé

    Sydney Children's Hospital, Australia

    1 publications · 45 citations

    1

    h-index

1–5 of 128

Institutions

100

  1. Murdoch University

    Perth, Australia

    3 h-index

    13 publications

    542 citations

  2. Government of Western Australia Department of Health

    East Perth, Australia

    2 h-index

    5 publications

    218 citations

  3. King Edward Memorial Hospital

    Subiaco, Australia

    2 h-index

    2 publications

    101 citations

  4. Inserm

    Paris, France

    2 h-index

    5 publications

    254 citations

  5. Government of Western Australia

    Perth, Australia

    2 h-index

    5 publications

    218 citations

  6. Finnish Institute for Health and Welfare

    Helsinki, Finland

    2 h-index

    2 publications

    78 citations

  7. Hôpital de la Timone

    Marseille, France

    2 h-index

    2 publications

    113 citations

  8. University of Colorado Anschutz Medical Campus

    Aurora, United States

    1 h-index

    3 publications

    96 citations

1–8 of 100

Venues

  1. PubMed

    Repository · 2 publications · 31 citations

    2

    h-index

  2. Orphanet Journal of Rare Diseases

    OJRD · 2 publications · 82 citations

    2

    h-index

  3. European Journal of Human Genetics

    EJHG · 1 publications · 35 citations

    1

    h-index

  4. European Journal of Public Health

    1 publications · 43 citations

    1

    h-index

  5. Journal of Library Metadata

    JLM · 1 publications · 14 citations

    1

    h-index

1–5