John Irwin

The Problem of Rarity: Estimation of Prevalence in Rare Disease

Stéphane Auvin, John Irwin, Paul Abi-Aad et al. · Value in Health · 2018 · 81 citations · Full text

Burden-of-illness and cost-driving factors in Dravet syndrome patients and carers: A prospective, multicenter study from Germany

Adam Strzelczyk, Malin Kalski, Thomas Bast et al. · European Journal of Paediatric Neurology · 2019 · 75 citations · Full text

Development and content validation of a preliminary core set of patient- and caregiver-relevant outcomes for inclusion in a potential composite endpoint for Dravet Syndrome

Rima Nabbout, Stéphane Auvin, Catherine Chiron et al. · Epilepsy & Behavior · 2017 · 71 citations

Caregiver impact and health service use in high and low severity Dravet syndrome: A multinational cohort study

Lieven Lagae, John Irwin, Alysia Battersby · Seizure · 2018 · 64 citations · Full text

Nursing, Family Medicine, Health Service Use +5

A multicenter, matched case‐control analysis comparing burden‐of‐illness in Dravet syndrome to refractory epilepsy and seizure remission in patients and caregivers in Germany

Adam Strzelczyk, Susanne Schubert‐Bast, Thomas Bast et al. · Epilepsia · 2019 · 55 citations · Full text