Pauline McCormack

International Charter of principles for sharing bio-specimens and data

Deborah Mascalzoni, Edward S. Dove, Yaffa Rubinstein et al. · European Journal of Human Genetics · 2014 · 153 citations · Full text

‘You should at least ask’. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research

Pauline McCormack, Anna Kole, Sabina Gainotti et al. · European Journal of Human Genetics · 2016 · 100 citations · Full text

Bioinformatics, Rare Disease Patients, Genomics Research +7

Improving the informed consent process in international collaborative rare disease research: effective consent for effective research

Sabina Gainotti, Simon Woods, Anna Kole et al. · European Journal of Human Genetics · 2016 · 65 citations · Full text

DISPUTING THE ETHICS OF RESEARCH: THE CHALLENGE FROM BIOETHICS AND PATIENT ACTIVISM TO THE INTERPRETATION OF THE DECLARATION OF HELSINKI IN CLINICAL TRIALS

Simon Woods, Pauline McCormack · Bioethics · 2012 · 34 citations · Full text

Precaution, governance and the failure of medical implants: the ASR(TM) hip in the UK

Matthias Wienroth, Pauline McCormack · Life Sciences Society and Policy · 2014 · 33 citations · Full text

Hip Implants, Surgery, Health Law +17