Matt Bolz-Johnson

“Patient Journeys”: improving care by patient involvement

Matt Bolz-Johnson, Jelena Meek · European Journal of Human Genetics · 2019 · 55 citations · Full text

Social Sciences, Health Services Administration, Continuity Of Care +14

Global health for rare diseases through primary care

Gareth Baynam, Adam L. Hartman, Mary Catherine V. Letinturier et al. · The Lancet Global Health · 2024 · 53 citations · Full text

Public Affairs, Health Policy, Health Systems +11

The importance of psychological support for parents and caregivers of children with a rare disease at diagnosis

Thomas Kenny, Kathleen R. Bogart, A. Freedman et al. · Rare Disease and Orphan Drugs Journal · 2022 · 34 citations · Full text

Nursing, Child Health, Pediatrics +17

Our greatest untapped resource: our patients

Matt Bolz-Johnson, Yann Le Cam, Inés Hernando · Journal of Community Genetics · 2021 · 27 citations · Full text

Medicine, Health Services Administration, Clinical Medicine +10

Designing rare disease care pathways in the Republic of Ireland: a co-operative model

Alana Ward, Daniel N. Murphy, Rita Marron et al. · Orphanet Journal of Rare Diseases · 2022 · 22 citations · Full text

Nursing, Health Systems, Clinical Medicine +16