Maureen E. Smith

Return of Genomic Results to Research Participants: The Floor, the Ceiling, and the Choices In Between

Gail P. Jarvik, Laura M. Amendola, Jonathan S. Berg et al. · The American Journal of Human Genetics · 2014 · 377 citations · Full text

Life Sciences, Genetics, Psychology +13

Public and Biobank Participant Attitudes toward Genetic Research Participation and Data Sharing

Amy A. Lemke, W.A. Wolf, Jeni Hebert‐Beirne et al. · Public Health Genomics · 2010 · 272 citations · Full text

Public Health, Genetics, Molecular Genetics +16

A systematic literature review of individuals’ perspectives on broad consent and data sharing in the United States

Nanibaa’ A. Garrison, Nila A Sathe, Armand H. Matheny Antommaria et al. · Genetics in Medicine · 2015 · 259 citations · Full text

Public Health, Health Policy, Data Ethics +16

Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US

Saskia C. Sanderson, Kyle B. Brothers, Nathaniel D. Mercaldo et al. · The American Journal of Human Genetics · 2017 · 258 citations · Full text

Public Health, Biomedical Informatics, Bioethics +16

Design and Anticipated Outcomes of the eMERGE-PGx Project: A Multicenter Pilot for Preemptive Pharmacogenomics in Electronic Health Record Systems

Laura J. Rasmussen‐Torvik, Sarah Stallings, Allan Gordon et al. · Clinical Pharmacology & Therapeutics · 2014 · 244 citations · Full text

Medicine, Biomedical Informatics, Health Informatics +17