Victoria Hedley

Implementation and relevance of FAIR data principles in biopharmaceutical R&D

John A. Wise, Alexandra Grebe de Barron, Andrea Splendiani et al. · Drug Discovery Today · 2019 · 165 citations · Full text

Computing, Biotechnology, Data Science +17

The context for the thematic grouping of rare diseases to facilitate the establishment of European Reference Networks

Teresinha Evangelista, Victoria Hedley, António Atalaia et al. · Orphanet Journal of Rare Diseases · 2016 · 45 citations · Full text

Management, Health Systems, Communities Of Practice +7

Shaping national plans and strategies for rare diseases in Europe: past, present, and future

Victoria Hedley, V. Bottarelli, Ariane Weinman et al. · Journal of Community Genetics · 2021 · 21 citations · Full text

Public Affairs, Health Policy, Healthcare Policy +8

Rare diseases: past achievements and future prospects

Biruté Tumiene, Ulf Kristoffersson, Victoria Hedley et al. · Journal of Community Genetics · 2021 · 18 citations · Full text

Life Sciences, Molecular Medicine, Pathobiology +8