Research with decisionally incapacitated older adults: practices of Canadian research ethics boards.

Abstract

Although research has provided great insight into neurodegenerative disor ders such as Alzheimer disease and other dementias, additional studies are needed to prevent these disorders, delay disease onset, reduce the caregiver burden, and develop more effective therapeutic strategies. Many countries have made dementia a national health priority and have launched action plans on dementia that include a research component.1 Some of that research must involve affected