In-Hospital Death and End-of-Life Status Among Patients With Adult Congenital Heart Disease ― A Retrospective Study Using the JROAD-DPC Database in Japan ―

Abstract

Nationwide data showed that patients with ACHD with greater disease complexity died at a younger age and underwent more invasive treatments before death, with many dying after ≥1 month of hospitalization. Discussing EOL options with patients at the appropriate time is important, particularly for patients with greater disease complexity.