Concepedia

Patient family engagement and partnership: Pilot survey results in assessing behavior, communication, and quality of life in children with Lennox–Gastaut syndrome and other drug-resistant epilepsy

Nathan D. Bliss, Anup D. Patel, Tracy Dixon‐Salazar, Lu Zhang, Melissa A. LoPresti, Maura Carroll, Marc B. Rosenman, Sandi Lam

Epilepsy & Behavior · 2023 · 11 citations · 15 references

DOI

Concepts

References

15

Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L)

Michael Herdman, Claire Gudex, Andrew Lloyd et al. · Quality of Life Research · 2011 · 10K citations · Full text

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PedsQL™ 4.0: Reliability and Validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in Healthy and Patient Populations

James W. Varni, Michael Seid, Paul S. Kurtin · Medical Care · 2001 · 5.1K citations

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The Patient-Reported Outcomes Measurement Information System (PROMIS)

David Cella, Susan Yount, Nan Rothrock et al. · Medical Care · 2007 · 3.1K citations

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Why clinical trial outcomes fail to translate into benefits for patients

Carl Heneghan, Ben Goldacre, Kamal R Mahtani · Trials · 2017 · 424 citations · Full text

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Encyclopedia of Autism Spectrum Disorders

Penny Dade · Reference Reviews · 2013 · 162 citations

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