Concepedia

Development of the sickle Pan-African research consortium registry in Tanzania: opportunity to harness data science for sickle cell disease

Daniel Kandonga, Raphael Zozimus Sangeda, Upendo Masamu, Eliah Kazumali, Agnes Jonathan, Michael Msangawale, Winfrida Kaihula, Julieth Rwegalulila, Jesca Ondego, Hilda Tutuba,

Frontiers in Hematology · 2023 · 14 citations · 22 references

DOIFull text

Open access

Abstract

The Tanzania SPARCO registry will improve healthcare for SCD in Africa through the facilitation of collaborative data-driven research for SCD.

References

22

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Paul A. Harris, Robert Taylor, Robert J. Thielke et al. · Journal of Biomedical Informatics · 2008 · 48.8K citations · Full text

, , +10

The REDCap consortium: Building an international community of software platform partners

Paul A. Harris, Robert J. Taylor, Brenda L. Minor et al. · Journal of Biomedical Informatics · 2019 · 22.2K citations · Full text

, , +13

Global Burden of Sickle Cell Anaemia in Children under Five, 2010–2050: Modelling Based on Demographics, Excess Mortality, and Interventions

Frédéric B. Piel, Simon I Hay, Sunetra Gupta et al. · PLoS Medicine · 2013 · 1.1K citations · Full text

Clinical outcomes in children with sickle cell disease living in England: a neonatal cohort in East London

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Impact of COVID-19 on outpatient visits and intravitreal treatments in a referral retina unit: let’s be ready for a plausible “rebound effect”

Enrico Borrelli, Domenico Grosso, Giovanna Vella et al. · Graefe s Archive for Clinical and Experimental Ophthalmology · 2020 · 87 citations · Full text