Journal of Child and Family Studies · 2022 · 16 citations · 14 references
EducationPsychiatrySpecial EducationAssistive TechnologyMental Health CareRehabilitationCaregiver SupportCaregivingFamily ResilienceFamily SupportMental HealthPsychosocial Aspects Of DisabilityChildren With Disabilities CaregivingCommunication With Family CaregiversDevelopmental Disability SupportDisability Access To Health CareHealth Care Utilization BarriersInformal CaregiversInterpretive DescriptionPsychosocial Support For Caregivers
Individuals with neuro-developmental disabilities (NDD) have been profoundly affected by the COVID-19 pandemic. Based on focus groups with 24 service providers supporting this population, using an Interpretive Description approach, we examined perceived impacts of the pandemic on individuals with NDD and their families. The results highlight pandemic-related experiences which include: service reduction, the need for financial supports, relying on natural supports, and school-related challenges. Interruptions in services have resulted in intensified mental health issues for individuals with NDD and family caregivers, with particular concern for those with added social determinants of health-related barriers. Mitigating factors have also emerged, such as resilience and technology utilization to facilitate communication. Recommendations for resource flexibility and sufficiency as well as navigational support are offered.
14