Concepedia

Development of a patient journey map for people living with cervical dystonia

Monika Benson, Alberto Albanese, Kailash P. Bhatia, Pascale Cavillon, Lorraine Cuffe, Kathrin König, Carola Reinhard

Orphanet Journal of Rare Diseases · 2022 · 33 citations · 27 references

DOIFull text

Open access

Abstract

We present the first patient journey map for CD that can be used to guide local service mapping and to compare current provision with what patients say they want and need.

References

27

Experience-based design: from redesigning the system around the patient to co-designing services with the patient

Paul Bate, Glenn Robert · BMJ Quality & Safety · 2006 · 1K citations · Full text

Practice guideline update summary: Botulinum neurotoxin for the treatment of blepharospasm, cervical dystonia, adult spasticity, and headache [RETIRED]

David M. Simpson, Mark Hallett, Eric Ashman et al. · Neurology · 2016 · 578 citations · Full text

EFNS guidelines on diagnosis and treatment of primary dystonias

Alberto Albanese, Friedrich Asmus, Kailash P. Bhatia et al. · European Journal of Neurology · 2010 · 425 citations · Full text

Idiopathic cervical dystonia: Clinical characteristics

Jane W. Chan, Mitchell F. Brin, Stanley Fahn · Movement Disorders · 1991 · 415 citations

What are the determinants of quality of life in people with cervical dystonia?

Yoav Ben‐Shlomo · Journal of Neurology Neurosurgery & Psychiatry · 2002 · 202 citations · Full text