Chronic pain patients' willingness to share personal identifiers on the web for the linkage of medico‐administrative claims and patient‐reported data: The chronic pain treatment cohort

Abstract

Although approximately half of the participants refused data linkage, our approach allowed for the implementation of a data platform that contains a diverse and substantial sample. This investigation has also led to the formulation of recommendations for web-based data linkage, including placing items designed to assess willingness to share personal identifiers at the end of the questionnaire, adding explanatory videos, and using a mixed-mode questionnaire.