npj Digital Medicine · 2020 · 24 citations · 14 references
ComputingData SciencePublic PolicyBig Data AnalyticsData EthicsHealth Information GovernanceData GovernanceData ProtectionData SharingOpen DataOpen Data PolicyPrivacy LawAccountability In Data PracticesAccountability In Health DataBig Data EthicsData Protection LawEthical Data GovernanceKnowledge ApprovalSocial License
Strategies to enable the reopening of businesses and schools in countries emerging from social-distancing measures revolve around knowledge of who has COVID-19 or is displaying recognized symptoms, the people with whom they have had physical contact, and which groups are most likely to experience adverse outcomes. Efforts to clarify these issues are drawing on the collection and use of large datasets about peoples' movements and their health. In this Comment, we outline the importance of earning social license for public approval of big data initiatives, and specify principles of data law and data governance practices that can promote social license. We provide illustrative examples from the United States, Canada, and the United Kingdom.
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Public trust in health care: the system or the doctor?
Michael Calnan · BMJ Quality & Safety · 2004 · 278 citations · Full text