Assessment of Bereaved Caregiver Experiences of Advance Care Planning for Children With Medical Complexity

Sarah Lord, Clara Moore, Madison Beatty, Eyal Cohen, Adam Rapoport, Jonathan Hellmann, Kathy Netten, Reshma Amin, Julia Orkin

JAMA Network Open · 2020 · 45 citations · 19 references

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Abstract

In this study, parental experiences revealed that there are key aspects of the structure of the child's care, process around ACP, and end-of-life care experiences that provide important reflections on ACP that warrant future study.

References

19