Publication of data collection forms from NHLBI funded sickle cell disease implementation consortium (SCDIC) registry - Concepedia

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Publication | Open Access

Publication of data collection forms from NHLBI funded sickle cell disease implementation consortium (SCDIC) registry

DOI Full Paper Access

35

Citations

10

References

2020

Year

Jeffrey Glassberg, Elizabeth A. Linton, Katrina Burson, Tabitha Hendershot, Joseph Telfair, Julie Kanter, Victor R. Gordeuk, Allison A. King, Cathy L. Melvin, Nirmish Shah,

Orphanet Journal of Rare Diseases

Abstract

The SCDIC Registry strives to provide an accurate, updated characterization of the adult and adolescent SCD population as well as standardized, validated data collecting tools to guide evidence-based research and practice.

References

	Year	Citations

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