Concepedia

“I Could Never Prepare for Something Like the Death of My Own Child”: Parental Perspectives on Preparedness at End of Life for Children With Complex Chronic Conditions

Jori F. Bogetz, Anna Revette, Abby R. Rosenberg, Danielle D. DeCourcey

Journal of Pain and Symptom Management · 2020 · 42 citations · 34 references

Concepts

NursingChild HealthPediatricsDevelopmental PsychologyEnd-of-life CarePalliative CareChildhood AdversityCoping StrategiesEnd-of-life Family PreparationFamily HealthParentingPediatric Palliative CareChildren With Chronic IllnessEnd-of-life Care In PediatricsEnd-of-life Decision-making For ChildrenEnd-of-life Decision-making For MinorsFamily Decision-making In DyingFamily Preparedness For DeathParental Coping

References

34

Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups

Allison Tong, Peter Sainsbury, Jonathan C. Craig · International Journal for Quality in Health Care · 2007 · 41.6K citations · Full text

Social Sciences, Health Policy, Evidence-based Practice +14

Pediatric Deaths Attributable to Complex Chronic Conditions: A Population-Based Study of Washington State, 1980–1997

Chris Feudtner, Dimitri Christakis, Frederick A. Connell · PEDIATRICS · 2000 · 815 citations

Public Health, Child Health, Pediatrics +14

Hospital Utilization and Characteristics of Patients Experiencing Recurrent Readmissions Within Children's Hospitals

Jay G. Berry · JAMA · 2011 · 524 citations

Medicine, Child Health, Pediatrics +17

Understanding of Prognosis Among Parents of Children Who Died of Cancer

Joanne Wolfe, Neil Klar, Holcombe E. Grier et al. · JAMA · 2000 · 470 citations

Medicine, Oncology, Pediatrics +11

Family Perspectives on the Quality of Pediatric Palliative Care

Nancy Contro, Judith Larson, Sarah Scofield et al. · Archives of Pediatrics and Adolescent Medicine · 2002 · 466 citations

Medicine, Child Health, Pediatrics +15