2019 · 44 citations · 67 references
Social SciencesCommunicationSocial PsychologyHealth CommunicationHealth Information PrivacyMen's HealthParticipant ConfidentialityParticipant PrivacyPatient PrivacyProtected Health InformationSexual StigmaStigmatizationHiv Status ConfidentialityHiv Status DisclosureInterview Data AnalysisInterview Study DesignMale Sexual HealthSelf-disclosureSexual Health Information PrivacyStigma Disclosure
HIV status disclosure fields in online sex-social applications ("apps") are designed to help increase awareness, reduce stigma, and promote sexual health. Public disclosure could also help those diagnosed relate to others with similar statuses to feel less isolated. However, in our interview study (n=28) with HIV positive and negative men who have sex with men (MSM), we found some users preferred to keep their status private, especially when disclosure could stigmatise and disadvantage them, or risk revealing their status to someone they knew offline in a different context. How do users manage these tensions between health, stigma, and privacy? We analysed our interview data using signalling theory as a conceptual framework and identify participants developing 'signal appropriation' strategies, helping them manage the disclosure of their HIV status. Additionally, we propose a set of design considerations that explore the use of signals in the design of sensitive disclosure fields.
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